I got diagnosed with A life long perminate illness in January. To help delay the condition and try an make me feel as comfortable as possible my drs have put me on medications. These medications have a lot of side effects and can do real harm if not monitored. Iam doing all the right things and getting monthly blood tests to monitor everything. My problem is my parents don't understand they just think I shouldn't be on the meds in the first place. Iam also taking natural meds to help aswell and currently take 9 tabs every day. It sounds a lot but most of them are natural meds. only 3 of those tabs are conventional medication.
Iam at a loss of how to explain to my parents this is going to be a life long disease, that needs careful monitoring. They think it will go away or Iam just being silly. They have never experienced someone young with this disease Iam 29. I have explained it to them so many times it's unreal I've even offered for them to come to one of my appointments so they can hear if from the dr but they refuse. I just can't seem to get it through their heads this is going to be a long road.
It gets very draining when they call me usually once a week to ask how everyone is and look down on me for still being on the medication. I had a revisit to my dr the other day and my medication doses have gone up so they go on a long rant of how that's really bad and I should be going down not up.
I have tried to explain to them Iam doing everything I can to help my body get on the lowest doses possible but their still not happy. They don't understand they are adding pressure to an already stressed out person Iam finding it extremly hard adjusting to all this. Iam 29 I have a mind of a 29 yr old but my body just won't let me do things I want to do, my body is failing me but my mind is perfectly fine and it's extremly frustrating how can I get through to my parents to ease up on me, and just try and support me best they can. My husband fully understands and supports me why can't they.
Illness and support
Illness and support
Posted in:
Self Care, Health & Wellbeing
1 Replies
I'm sorry you are going through this. It's not uncommon for people to be in denial. My friend is an oncologist and more often than not has to keep reiterating diagnosis and prognosis because relatives and sometimes the patient go into denial.
I would have suggested they go to the appointments but I suspect they won't go because they wouldn't cope with what they heard. Make sure you provide them with lots of material to read about your illness and get the doctor to write them a letter outlining treatment and prognosis.
Make sure your parents see you on a bad day! I found my family understood my sons illness better when they saw it with there own eyes.
If they can't come around to being understanding about your illness you may have to force them to come to an appointment by organising an outing but taking them to an appointment without giving them the heads up.