My husband and I are both full time carers for our son.
Why do people judge our situation or what we do.
My husband went from a full time job to having to quit to help me care for our son, under doctors orders.
We both would love to work, have that adult time. But we both enjoy caring for our son, some days are rough, but we get there.
I just don't understand it, if your son was fully disabled wouldn't you stop everything to care for them.
We have been called selfish because we have other children, we get called government bludgers. It just doesn't end.
It's all just stressing me out !!!!! I know I shouldn't let it bother me but I do :-(
caring for son
caring for son
Posted in:
Mental Health, Anxiety & Depression
2 Replies
It's crappy. I guess the only thing you can do is realise your own strength, realise that you're doing what you are because it's what YOU and your family want and need. There needs to be no other justification than that. And when people call you out, saying you're bludgers pull them up on it. Tell them exactly why you're stay at home parents and that your love for your child will overcome any words that people have to say about you and your family.
It really is tough and it can be easier said than done to ignore it and stand up for yourself. But it's through the struggle and the knowledge that you're doing what is best for your family that you can find the courage to not care anymore. Stay strong!
I'm a sole parent to an adult with multiple disabilities. There have been times (with the right care arrangements in place) I have been able to work but currently that is just not possible. The amount of funding the government would have to provide so I could return to meaningful work is about $80 000 a year. I would have to threaten to make my son homeless in order to get even half of that funding. So I am a stay at home carer to an adult who basically sleeps most of the day. I can't go anywhere in case of a number of factors. I get a total of 8hrs a week respite in which I go to the gym, do food shopping, walk the dog and run any other errands. Luckily for me I don't have any more kids because I just couldn't do it (But great if you have kids) I couldn't get them to school, or sports or doctors appointments etc. luckily I don't have to worry about lifting etc because once awake he can manoeuvre himself around, but if I had to lift him there is no way I could do it on my own.
When awake my son can have huge mealt downs where I have to quickly medicate for his safety and mine. It is dangerous work and I wonder what would happen if i did get hurt. There would be nobody to help me or save me.
So I don't judge you. I get it.