Hi IMs.
My little one has a genetic condition called Brachydactyly in which some fingers are shorter than normal on both hands. Whilst she is still young and oblivious to this, i am hoping some mums or dads out there may have some advice on how to approach the subject as she gets older and starts questioning why she is different? As a mother, i am also fearful of possible teasing later in life and i want to instill confidence in her that she is no more different to anyone else. Anyone have some experience in a similar situation?

2 Replies
There are some great resources available for this. We have used some with my son with multiple disabilities who looks and behaves differently. The basic premise we follow is that everyone is different. Some people have short hair, long hair, spikey hair etc. We started talking about this at a young age (before school). We also pointed out that difference is good and that although some one might point out that you are different, that it was ok because everybody is different! We also focused on different things we were good at and not good at. For example I can't ride a bike but grandpa can, grandma is good at painting, Im good at dancing etc.
We also don't get embarrassed if some well meaning person asks me or my son questions about his differences. We use that as an opportunity to educate about his conditions and how we feel about them eg yes he is different but very typical and it doesn't stop him from doing anything his peers do etc. BTW my son is the most popular young man, where ever we go everyone says hello to him and Im the one left feeling like the gooseberry!
We didn't have a problem with teasing, with so many different people being mainstreamed these days most kids know someone with a condition by the time they reach school. They are generally very accepting, they may ask questions and that is ok, and usually with a simple explanation they have forgotten all about it!
If you get a chance have a look at the Facebook page of an absolutely beautiful mother from SA, it's called Zackary's Treacher Collins Journey.