My 8 year old has just been diagnosed with a congenital heart defect called Aortopulmonary Septal Defect (aka aortopulmonary window). I would love to hear from anyone who has/is caring for a child with this defect and ONLY this defect - most cases come with other defects on top of this but this is thankfully not the case for our son. I would love to be able to chat with you as I am struggling to find support locally - no one we know has heard of this defect, our cardiologist was even surprised and reserved on how to proceed as it’s the first congenital case he has ever seen. Many thanks in advance
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