Hi, my 6 year old daughter is being tested for Lupus. She has a red rash on cheeks and nose that gets worse after sun and bright light's. Joint pain and brittle hair.
What I am reading online is scaring me. I know I shouldn't read too much into it until I have some results but I can't help myself. The percentages and lifespan figures have made me feel sick.
Anyone in this situation?
TIA
3 Replies
My mum had lupus every time she went out in the sun she would end up with 3rd degree burns the main areas she had it was on her face neck arms hand hands and some how got it on the bottom of her feet I would see her Struggle with it on a daily basis and it was horrible my mum died in April of 2014 doctors said the lupus caused her to have a stoke I hope ur daughter doesn't have it
Don't panic! There are ver effective treatments for lupus these days.
A friends daughter was diagnosed last year and had to take a short term medication and now she is good to go.
Treatment for lupus as moved on the last few years.
Try not to stress too much xx My mum has had Lupus most of my life and is still going strong at 78 years old. There are lots of medications etc that will help your little girl, but fingers crossed it's not lupus anyhow. Big hugs to you mumma xxxx