Crohns Disease

Hey lovely IM I'm hoping someone might be about to shed some light and maybe help with some tips. I've got Crohns Disease. My crohns as affected me severally for about 10 years. I've had my ups and downs in that but it affects me in other ways terribaly. I have sacroilitis and aurthritis from it. I was on medication for a couple of years and that medication helped with my crohns and the other symptoms. It stopped working earlier this year and I've been switched to new medication. However that medication (stellar) has worked to control anything by my bowel/gut symptoms. I'm to the point I struggle to even get out of bed of a morning. My back gave way last week on me and I've had enough. My gp who I've seen since I was a baby has IBD so has a pretty great knowledge of it and is amazing. She's ordered an up to date scan of my back and is going to do a health care plan to get some free Physio but I pretty much can't take anything but pain relief when it's really bad. I'm so over it. She had physio and the Pilatise will help but won't start helping did about a year with regularly going.
I'm a single mum and I need ways to cope I'm the short term other than pain medication. My house is never spotless (it isn't dirty either just untidy) I struggle to get up and do things with the kids. Maybe if my scan is worse than it was I maybe referred back to another specialist but I don't really know what there is they can do. I've used medication for my crohns that is engerally used to treat arthritis etc and my body has reacted or its stopped working.
I'm so exhausted and so over it. I just feel like I've had enough. I don't get up and play with my kids as much as I'd like. I struggle to stand and do the dishes (I wish I had a dishwasher). I literally just want to cry about it all. I'm not one to feel sorry for myself and I keep on going but I really am over it. It's affecting so much of my life. I don't think I can't afford physio regularly. I work part time but physio is so expensive.
I'm just so lost! Loosing some weight may help but the problem is getting up and moving. My body literally aches so bad I want to cry. I don't know how I'm supposed to get up and exercise when I'm in so much pain. I'm so frustrated that i ended up with this disease. Sometimes I think why'd I end up with all these issues out of all my siblings. Not one of them have anything wrong. Sometimes I envy them and wish it was one of them.
They judge me because my house is never spotless. They tell me I'm a shit parent and that I need to do more.
It's not that I don't want to do better it's I physically can't sometimes. They just dont seem to understand. I get up and go to work everyday despite the pain. My kids are fed, clean, couldn't want for anything and very smart and well adapted. They judge me for my child's attitude at times. She's very headstrong and has massive melt downs but is the most caring child and had such a good report card saying what a beautiful child she is and that she's smart and a quiet achiever. That she's the first to help anyone and straight to someone that's upset or hurt to make sure they are ok. There's a disabled child in her class and she shadows this child to put her shoes on (don't have the use of one of her hands) or open her lunch box yet my family think my child and parenting is crap. How can they think that when she's just a child that has meltdowns at times?
I don't judge their kids. My family are great at times but lot always. They are hit and miss with their help.
Sorry I'm ranting now I'm just so angry and sad at the world right now.