I'm 34, I have all of these conditions. As well as thickening of my uterine wall (can't remember the actual term for it) and not surprisingly I'm now starting to suffer from depression. Has anyone else been through anything like this? It just doesn't seem like it can be real. I'm on so much medication and in so much pain.
I'm completely fatigued and exhausted 24/7. I have a throbbing headache all the time and my sinuses get so bad sometimes I get so dizzy I have to hold the wall to walk.
I just can't believe this is happening to me. I'm a terrible mother and wife, I'm cranky and exhausted all the time. I have no energy to play with my child. I seriously considered walking out in front of a truck a week or so ago the pain and fatigue was just so intolerable. But I thought knowing my luck I'd just end up in s wheelchair, not dead.
I've been on methotrexate for my PA for 3 weeks now, I've got panadeine forte for the pain which I try not to use. I've just finished 2 courses of antibiotics and steroids for my sinuses (I end up using the PF for my sinuses rather than anything else). And I just started endep for my depression and to help me sleep. And now today I've just found out I need thyroxine as well.
Wtaf? What is wrong with me? How can this happen? I know I haven't done anything to deserve this and even if I had I know the world doesn't work like this but what am I meant to do? I can't live with this pain and fatigue. Does Methotrexate work as well as they say it does? What if it make me sinuses even worse? They are talking about putting me on a low dose antibiotic indefinitely as I get a new infection within a few weeks of finishing a dose of antibiotics due to my sinusitis being triggered by my grass allergy. (I've started SLIT drops for this about a month ago so hopefully this will help).
I don't know what I'm even wanting by writing here. Maybe I just need to have a sook. I'm feeling pretty sorry for myself. I just don't get it. When does it end? Is this my life for the next 50 years? Because if it is I can't see me making it that long.
I feel like I should be on an episode of House.
I've tried acupuncture, I've seen a naturopath, I take vitamins. I eat really well I just don't understand why this is happening.
Anyway, thanks for taking the time to read sooking, maybe I'll feel better in a few weeks when ALL the drugs start doing their thing. :/
3 Replies
Hang in there honey, I know things feel really bad right now, but hang I there. It does take awhile for the right medication etc to be found and I know it feels deeply unfair that you have a cluster of health problems but just know you aren't alone.
My son seems to be a collector of diagnosis he is now up to number 5 and he is only 22! The last one is very rare, 1000 people in the world have his condition so there is no known treatment. There was just a bunch of experimenting with some really scary sounding drugs until we found what worked for him. We really had no choice because his quality of life was so poor that he was either bed ridden or in so much confusion he became violent towards me and self harmed. It was incredibly distressing for him and me.
We are now 3 years on from that diagnosis and we have found the right medication. He has far, far more good days than bad. The worst of the symptoms have pretty much disappeared and he is my happy young man again all be it with an interesting collection of conditions.
I hope you can take some hope from his story. I also found finding some Facebook groups related to his diagnosis invaluable for support. Just reaching out to someone who has been before you regarding your condition can really provide hope.
I have RA and aswell as other meds have taken methotrexate for close to 2yrs. It totally sucks if you happen to get an infecion it lingers for weeks and weeks. Cuts and sores same thing. It took a good few months for it to start working but it has bought my markers down. On the down side the worse side effect i get is feeling sick a few days after taking it and also my hair has fallen out really badly. My specialist recommend to take folic acid every day besides the day i take methotrexate to help with the side effects. I also take tumeric in tabelt form. The other thing i have that helps alot is celery. When your body is in pain it releases acid into your muscles celery is alkaline andd thereforw if you eat enough it can combat the fatigue.
My only other advice is to research learn about your disease learn about treatments and about natural things that can help. The fatigue is just sometimes you just have to make your self do it.
Hi, I'm quite positive I know what your problem is. It links all 3 of your symptoms. Feel free to contact me at kurtsaidwhat@yahoo.com
Not sure if you will see this though since you posted anonymously.