I have a question for other members of this community. So I can come to my decision with by intellect not just my feelings. Thank you
I have a 2.4 yr old child. My child was delivered 6 weeks premature due to my Epilepsy being out of control during the pregnancy and spent some time in Special Care. My child has been experiencing Absence Seizures’ for almost 18 months. They have experienced 2 Drop Attacks, 2 Clonic Tonic seizures and what I assume to be Nocturnal Seizures .They have been categorized as a Cat 1 by the doctors. There are other factors involved as to why I am for the testing to be done, but other family members want the Advantages to quality of life before we go ahead with testing. So I ask, what the Pros and Cons each of you went through before deciding to go ahead with a Sleep Deprived EEG, even knowing it may or may not produce a result?
This is really only a question for parents with Epileptic children or who have Epilepsy themselves, so as much I know your post will be well meaning. Please if you don’t fall into those categories, please don’t post.
Thank you for your time in reading and commenting on your experience. It means a lot to me and my family.
1 Replies
Hi there my son has a condition called Tuberous Sclerosis Complex but our first signs of this were absent seizures we have had so many EEG's done its not funny our son was 8 months when he was diagnosed it wasnt till last year that we got our first seizure recorded. In the end my thoughts were this could really help my child if we can get them controlled then that is quality to life. My sons arent but there are so many options now as to options... I am hoping this helps please im happy to answer anything else